Philly moms, did you know that September is Leukodystrophy Awareness Month? To help raise awareness, The Children's Hospital of Philadelphia (CHOP) is shining a blue light to show support for those affected by this complex group of disorders. Leukodystrophies are inherited conditions that impact the brain and spinal cord's white matter, affecting movement, speech, vision, hearing, and development.
At CHOP, the Leukodystrophy Center is home to a highly specialized team of experts dedicated to advancing clinical care and research for these disorders. Thanks to their incredible patients, families, and advocacy partners, CHOP is making strides in improving care and understanding leukodystrophies.
As parents, learning more about medical conditions like leukodystrophies helps us better support those around us and contribute to raising awareness. CHOP continues to make a positive impact through their research and care for children with these complex conditions.
To learn more about CHOP's Leukodystrophy Center and how you can support their efforts, click here.
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Celebrate creativity and inclusivity at The Candy Lab's Edible Crafts workshop for neurodiverse kids on June 14 in Ardmore. Perfect for children ages 5–12 to enjoy hands-on, sensory-friendly fun.
Celebrate kindness, play, and friendship at Squiggles & Friends Day on May 24 at the Please Touch Museum! A fun-filled day packed with hands-on activities and special guests - perfect for Philly families.
Try something new this season! Enjoy free walk-up archery every Wednesday at FDR Park - no registration required and perfect for kids 10+.
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Amber Bowie
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